Report transcript in: Jiten Talks About Co-Production

Please Report the Errrors?

So,

can I get you to introduce yourself?

Uh,

my name is Gen.

Yeah.

And I had a stroke in

in COVID period.

And because of the doctor negligent and the ambulance staff

abused.

They left me

paralysed for life.

If they could

Take uh I

Action

immediately,

at least

they could

save me

from

little bit,

for example,

walking.

Eyesight.

And my mental problem they could save it,

but they could not.

They took me

to Norwich Park Hospital,

which is

just a normal hospital.

The hospital for the

stroke which I got

was National Hospital.

The Ambulance was supposed to take me to National Hospital,

which they didn't take,

and two days

I was lying

in no reply.

No,

no food,

no water,

no any medication

till

midnight of the

2nd day.

As I remember,

they took me to National Hospital,

and they declared that you have stroke,

and from there

they cannot do

anything.

At the moment,

it's already been

3 years.

I am here 24/7 in my flat.

After coming uh

from hospital care home,

hotel,

shared home.

Uh,

almost

18 months.

am OK with her.

Myself

alone.

I can tell her

truthly,

Isaac.

I'm in jail!

Only

I got

permission to go out one day

to go and buy milk

and bread.

Otherwise,

I am a lifetime.

Sorry.

Lifetime I'm in prison.

Just because of the

doctor.

And ambulance staff.

Every day.

Whenever I feel anything.

If I call GP or I email them,

they said this email is

not for

writing your problem.

You call us.

If I call,

press number 123.

If you choose 1,

then wait,

wait,

wait

till

you finish your.

Top up

of my phone.

No one

is ready to understand.

Especially

people from council.

Or GP

anybody,

hospital,

doctor.

No,

nothing.

Blind Association,

I had joined the group,

which is on Tuesday.

They call you,

they talk

just for one hour

about your problem.

What's going on here?

Nothing about life.

They just talk about

general topic

who,

who has been bitten by a dog,

who has been

going,

nothing.

It's just

We are talking.

I mostly,

I don't talk because I don't see

it's worth,

but I just listen to them

and I just say hello,

how are you?

and that is the

end.

Then

just sitting home,

watch TV.

I'm

very much nowadays,

each and everything about news,

what's going on.

About COVID.

Inquiry

People

dying night

crime,

knife crime.

People are dying.

Just today,

I saw 4 children died in an accident

in Wales.

I'm just saying why I'm not dying.

Why this teenager are dying.

Because I'm

fed up of my life.

I eat,

I sleep,

but that is not enough.

I can't meet my sister.

I can't meet my friends.

I can't go anywhere.

Christmas is coming,

but for me

it's not Christmas.

It's nothing for me.

And I don't want to

think about Christmas.

Because what I will do with Christmas.

Nothing to do.

Before

I could do so many things.

I'm not saying that people don't get sick.

People get sick,

but they could save my life a little bit more.

They left me 100% totally.

Without

doing anything to me.

At least they could do it 25%,

25% I could do it myself at home.

Then

50%

I could.

But today I want to go anywhere.

I have to wait some for someone.

At least in that 50%,

I could walk to the bus stop,

I could take Oyster card,

I could go to one place to another place.

Myself

How long are we going to depend

one person?

I'm

not getting younger.

I'm getting old.

And the person

Who

are they,

even they're getting old.

how long?

So this is prison is killing me.

It's killing me every day.

I'm not leaving.

I'm dying

every day I can say like that.

Everything is good.

Fine,

people are supporting

that,

that for everything.

But

is this the life?

Same thing in the prison,

who are the prisoner

for life.

They get food.

They see the TV,

they go to the toilet,

they get a shower.

Then what is wrong?

There's nothing,

same as me.

It's only I am

in council flat.

Which I decorate sometimes problem.

Then,

what is,

this is the situation?

I have written a letter to

our Prime Minister regarding my negligent of medical.

He doesn't bother.

To reply,

I don't say he's busy.

I know he's busy.

But

he can reopen COVID inquiry

or the government has opened the COVID inquiry,

then why not mine?

I wrote to the pal NHS.

They say we cannot do anything.

It is too late.

You have to inform before,

so.

I asked the question.

Did I knew

that on the 17th April of 2020,

I'm going to have a stroke,

so I informed NHF they see,

tomorrow I'm going to have a stroke,

so you be ready.

To do or to

look after me

the ambulance staff

who dragged me from 2nd floor.

To the ambulance.

With bare feet

till

I hurt in my leg.

I came to know when I was in the hospital

my leg was totally with blood.

I didn't recognise when he was dragging me down

from the 2nd floor

because my leg,

my body part was already become paralysed.

Even today,

if anybody comes

and cut on my left hand side,

I will not feel anything.

I will see only blood is coming out

from my body.

So he drugged me and

what he,

he,

he took me down,

that is fine.

But what he hurt me.

That he told me

that if you don't come with me,

I will just put you down here and I will go away.

Is this the,

are you working in ambulance service,

and you told me

that

I will just leave you there

because he told me like that

and I got scared that what will happen to me?

What will happen to my loved one,

so I become strong

and

from second floor.

I came

with him.

It's only me I know.

I don't care about what happened to my finger

if the blood was coming or not,

but how could he

tell me like that.

Because I'm not white.

You want to tell me like that?

That they can treat me.

The lady who was taking,

I was checking me,

she was doing very

politely.

There's nothing happened to me.

They were supposed to take immediate action

while I was on my bed.

I told her that my hand is not working.

But she was just with the

Doing some test which

it was not important.

It was important

to take me to hospital.

To inform the doctor something happened.

I want to tell BBC

you have

the advertise when you have stroke,

call 99.

Remember,

if I'm mistaken,

there's advertised BBC people show.

The lady is doing makeup.

And then

suddenly she gets struck.

A fire come out from her brand.

His speech become.

Down and hand fall down.

And then

advertise come.

If you

feel some thing like that,

please call 999.

And then

And

He her hand

Mouth

and head become good and she start doing again the makeup,

which means she was treated

nicely

by NHS.

And the NHS advertise

present there.

Same thing

happened to me,

but what NHS did.

When I went on first day

hospital,

I didn't know anything.

I'm not a doctor.

But what the doctor told me,

I told him that I got vertigo in Sainsbury where I was working.

What she said,

no,

nothing is there.

Your uh hand

right hand side is fracture.

You cannot put POP.

You just go home.

And another doctor said,

Run,

run,

go home.

Because COVID is there,

he was not bothered to do uh think how come this person has fall down.

He was not wearing mask

in the reception,

nobody was wearing mask in the

What they say the X-ray room,

nobody was wearing masks.

People there,

plenty of people were there.

I went in the morning until 4 o'clock.

I went home.

Nobody was wearing mask

and he,

the doctor said

there's a lot of uh

COVID.

Go home,

go home.

I took 114.

Nobody was wearing mask.

I went home.

I eat,

I do everything.

Next day,

again,

I went to hospital because my I was

totally

born.

At least on the first day they could told me

stay here.

We want to examine you

for further.

Why did you fall down

in Sainsbury?

It was vertigo.

How it happened because I never had vertigo in my life.

47 years of my life

from Africa to India to India to UK.

47 years of my life.

I never had any vertigo.

That was the first time.

Then

if they were doctor,

real doctor,

they could talk to me.

This is something seriously.

I was been taking

uh diabetes medication,

pressure medication.

Other medications.

Then why they didn't

look into matter?

And then

they say we do this and that and

No.

I am

Very,

very much

for the NHF.

If they go on strike,

I don't care.

I hate them.

nobody.

Even ambulance staff,

because you are the right,

you can track me down.

If you could live with me,

let me die.

That was the

important was that for me now.

They could live with me and die.

They could write in the certificate.

He died because of the COVID uh

COVID.

My friends,

my family,

they will cry for 2 days,

3 days,

4 days,

buried me or

topic will be finished.

But

this for me now,

why they saved my life

and left me like this.

I can't go.

I can't go to the pharmacy to buy medication of myself.

I have to call them.

I left with one week medication.

Can you bring for me

or whenever I go Saturday nowadays I go out on Saturday,

Friday I don't go.

Saturday they are closed,

so I have to call them.

That can I have my medication?

I have,

you might see that why I'm brown because I had to have hair.

ringworms are coming up.

It's just because of

my stroke.

I didn't have

before in 47 years,

I never had that problem.

But now the problems are coming

because my stroke start from my head.

To on my left hand side.

That's why I lost my two both eye,

my left hand side,

my left leg.

Nothing.

why I'm living?

Why I'm wasting my life?

I'm supposed to rest in peace.

At least I can say that I'm resting in peace.

I don't,

I'm

giving problem to my friends.

I'm giving problems to my sister,

mother,

loved ones.

Today,

no friends are trying to commit to me.

As far as you know,

I had a lot of friends,

but they are 0 because they think that

I'm in trouble.

I'm disabled.

They don't look at me as a gitan.

They look at me.

I'm disabled.

I'm paralysed man.

Why will go to his place.

Same thing with

council people.

Anybody

For example,

I have.

Insurance people?

And payroll people.

100 times I have told them,

if you email me please,

can you write it in the big letter because of my

eyesight.

I can't

read.

I don't have a laptop.

I don't have a computer in my house.

I'm using my phone.

They said we cannot do.

This is the procedure.

Even I,

I zoom,

sometimes I miss.

Letter which I get.

Except virgin.

They,

because I told them that I'm partially blind.

I can't read what

invoice or

Contract you send me,

I can't read.

So they are the only people

who send me letter

with the blind

things.

And second,

blind association

because they are blind association and they know because I'm partially blind,

but nobody else,

whether it's a

MP block black black man.

Anybody,

even the hospital,

National Hospital,

they know that I'm blind.

I need an appointment,

but they send a letter in the small.

I have to zoom it or whenever my personal assistant come to me,

I have to ask him

what it is written.

Then he has to mention me.

Your appointment is is in the February or March.

that is the thing.

Whenever

I ask GP I have tooth problem because when I

fell down by vertigo,

I lost my teeth

and

I have a problem with the event did happen.

I ask,

I cannot manage to pay,

so I need free consultation.

Which I

told them last year

and they gave me.

Appointment October this year.

And when I asked the report in GP,

they said,

we haven't received any report of your teeth.

So we don't know.

So why,

why harass me every now and then if you can't do it?

Just tell me.

Even

I can't go anywhere to jump in the

railway tube station

to kill myself because

I can't walk to there.

Whenever I go out,

somebody's with me.

Then I can't do even that.

Because I don't want to.

Tomorrow I jump

and police ask him

and they take him in the remand

that while you were there

and you could not save my life.

These things I'm not thinking.

But it comes

when you switch off the light.

When in the morning Carol left,

you start thinking

while you're watching BBC News.

The girl

was going to school.

She was killed.

4 boys went for the picnic,

got accidents,

were killed.

They died.

lady went for walking and drowned in the water.

A nurse

killed the newborn baby.

And

And it just.

How many babies she killed?

And it's just stuff.

6th baby was dead.

They didn't notice anything.

They noticed after 6 maybe?

Which kind of

people you are?

On the first baby

she killed.

And then she said that

natural death is what happened.

They took action.

If they are

the correct people

in the NHS.

Why they waited another 5 babies to die.

Then

you say,

oh,

we have catch you.

You will be going to jail.

She's happy.

No mortgage,

no me,

no nothing.

No work,

eat,

sleep,

watch TV.

For

lifetime.

Same as me,

no different.

She's happy,

and I'm not happy.

I am in the prison.

Can I ask you,

I know you really wanted to share your story because

you wanted to talk about co-production

and how

you've tried to get involved in things and people don't

involve you.

Yeah.

And I know like you've shared so much about and that,

you know,

it's really hard to hear and thank you for sharing.

So why do you think people don't involve you in

co-production?

Because I'm disabled,

I'm partially blind.

That's the reason.

That is the reason.

Mhm

They don't want to involve me.

Because

I think that.

If they involve me.

Maybe I will talk the truth.

Oh,

they have to look after me.

Which they don't want it.

Because they have to take care of me.

But they don't want it.

What difference would it make

being involved in co production to you,

like what,

what would it?

If I involve.

I can protect.

What

got.

It's fine,

but

if I involve.

I will try my best.

It should not be happen to another person.

Stroke is not like that.

It happens to me only.

It can happen to anybody,

my neighbour,

my family member,

my friends,

anybody,

even tomorrow,

Prime Minister Rusi Sudok will get stroke.

I don't want

that thing to be repeated

again

and again.

By telling people what happened to me.

And what the NHS staff and doctor did it to me,

they should not repeat.

They should not repeat what happened to me.

Respect is very important.

They announced,

um,

if you see

every,

every minute,

donation,

donation.

This country is depending on donation only.

I told my personal assistant,

if I'm working with Sainsbury,

I'm good.

If I try to donate 5 pounds to

each and every

Group,

they are announcing at the moment in TV

in Facebook.

I have to borrow

another 500

from bank

to donate all the group who ask for donation.

I'm not using even a single penny from my salary.

A whole salary will go into the donation plus 500.

I asked the bank to give me,

to give to charity to this old charity.

That much charity are here in UK.

Summer

there's a charity for walking for this,

for this,

and that

how many.

I'm,

when I see those charity,

if I count,

there's 1000 of them.

BBC Children.

Charity is there

which children have got even a 10 pounds.

None.

Rose they knows,

they say money goes to Africa.

I am from Africa.

I can prove myself

that nobody got that money.

That money goes to the leader

and leader what he do,

leader who is in the mix.

Chair,

what he do in he is a leader,

but he has somebody

in his family

who is a little bit poor.

In front of camera,

he will bring that person,

give some money to him.

That is a big amount to him.

And

in BBC they take the camera,

they say,

OK,

hello,

hello.

Yeah,

I got money,

I got money.

Rose knows.

And that news they will show in BBC News or they have donated

Africa.

Rest of money

goes to the,

the chairperson.

I am telling you 110% because I am from that country,

Africa continent.

These things happen.

Your charity,

my charity,

when you give to red nose or these children,

doesn't reach to anybody.

Tell me

You are working with BBC and you are doing some charity.

You don't want to eat.

Your family doesn't need to pay the mortgage.

You don't want to pay the bills.

If you say yes,

then where do you get from that money?

The money you are getting that money they are getting from the charity.

In the name of children,

in the name of red nose.

Yeah,

how big red nose events will be?

Billions,

pounds light stage programme.

Wow,

is this free?

You want to tell me that it is free.

Children,

BBC,

it was uh on Friday,

last Friday.

Events,

singers came.

Comedian came.

Presenters came.

Nice cloth.

Does it came free?

No.

Where did they get the money from.

government that doesn't pay,

it is the same money which you donated,

your percentage some maybe it will go in the lighting,

some,

it will go in the production,

and the rest which left,

then they will say,

oh,

we have donated here.

Full stop.

People are getting

Money

for uh for being charity.

But it is nothing

and

Even I

am very.

About my stroke.

When I was

working in Sainsbury,

I donated 2 dogs.

I lauded them.

They are so poppy nice.

I could not keep in my house,

but they were poppy for the blind.

So every month

I have to pay some 12 pounds 50.

For two dogs to train them for the blind people.

I was paying

regularly because it's a direct debit,

I don't have to wait.

It will come out from,

I know it will come out from my bank account.

But when I got struck,

I have to stop.

I love them.

I know,

I don't have kids.

I don't have a wife,

except my sister and my,

my mother.

Those two dogs,

Milo and Marlo,

were my kid.

And NHS doctor.

Took it from me.

I hate

why they did it.

My kids were not human,

they were in form of dogs,

but I loved them.

One was black and one was white.

Still I have their pictures.

I feel,

shall I throw it away or not,

because I loved them.

Nobody forced me to donate them.

I just saw

the picture from the person who was.

Advertising.

For the charity,

and I loved them with my eyes.

My heart said,

you,

you are working,

please

adopt them.

Adopt them,

but today,

whether they are living or they are dead,

I don't know

because I stopped giving them.

I stop

being dead to them.

So I don't get any information from them,

uh,

dog society

that what happened to them,

who has taken to them,

how they have progressed.

Nothing.

It's just because I have a stroke.

I lost them

And I feel very,

very bad.

That I feel

why I lost my kid.

Remember yours to tell me.

You you adopt dog,

he will be here with you.

And what I said,

no.

Because I know

I adopt

and something happened to him.

Because I already lost two of them.

Ma,

they are still alive,

I know.

But were they?

I don't know.

I had an album.

They send it to me.

Beginning from puppy.

adult,

you have to put the photographs every time,

every time.

Today I don't know how they look like.

Because

I had a stroke

So I am out of

Communication.

So I lost them.

So what can I do?

You tell me.

Is this the right life?

Yeah,

people tell me,

don't worry,

everything will be fine.

Whenever I get,

I get angry,

oh,

God will make you,

everything will be fine.

I don't care about this bastard god.

In the first place.

If he wants to make me

good,

then why he made me this like this?

I don't believe in miracle.

I don't believe in miracle at all.

This happened that,

oh,

every,

every now and then when my cousin

called me from uh Kenya,

uh,

you will be fine,

you will be fine.

Excuse me?

Don't give me hope,

one friend from India.

Don't worry,

you'll be fine.

God is there.

told him.

Please

stop.

Telling me such thing because I'm not going to be.

Same

the way you saw me when I visit India.

It is not

possible.

fight with him on the phone.

Then now even he stopped me talking

rubbish thing because I'm tired of this rubbish thing.

Have you eaten?

Uh,

God will there.

He will do everything.

This is

This is,

I don't understand.

I don't understand

the logic of people even.

People,

when I was

working,

I was going out

that time people were

Talking to me,

especially even

our group is closed.

That was the best group in my life.

I have contact with them people.

But they are not young like me.

Even their people are getting older.

Some have moved from London to.

Cyprus,

some have moved to Brighton.

Some they are living very far from me.

very,

very difficult for me

and because I can't contact them because they are living far and I can't go.

They are going out

for like a Christmas party

or summer picnic.

They always put in the group that they are going,

they are going.

But

I can't go.

So,

I'm tired.

I don't know myself what to do.

You know,

you were saying to me when we had that pre-chat,

you've really tried to get involved

different things with the council,

with charities,

and this thing around um.

In being involved

and you just.

Yeah,

you said that

people just don't involve you.

Yeah,

they don't involve me.

Yes.

And

why do you think they don't involve you,

Jin?

Maybe they don't want to involve me because they have to take responsibility

for me to take

care of me,

to come and pick me,

to take me there.

Yeah.

And what difference,

you know,

what you wanna,

you said that,

you know,

that you wanna make a difference don't you,

you wanna share your experience to make a difference.

Mm.

What,

what do you think co-production could,

how could co-production be different?

Co-production,

they can understand what

I'm,

I'm trying to say.

And they,

they can

spread

my voice

to general people.

That

these things.

Is going on

Even

my voice,

they can inform those doctors.

what doctor are supposed to do when

you get a

client or patient?

Whether it's a COVID,

whether it's a cancering,

prostate,

anything situation,

you are a doctor.

You are supposed to

take care.

You have to study the history of the person,

why this happened.

You say,

they said ambulance reached within 5,

1015 minutes

to the patient.

Fine,

but do they treat

the patient

right way?

Yes or no?

With my experience,

they treat me

very badly.

Still

within 3 years,

my finger

has not cured.

So this information I want to pass,

what that man has done to me.

Nobody else

should go through

that.

Direction.

And when you go to the charities and you go to

these organisations trying to be involved,

like disability,

you remember you were telling me about

the disability organisation you wanted to get involved with,

you wanted to get involved with this,

the other organisation.

Like why do you think,

so you're going there to make a difference,

but.

What what

What could they do to,

to involve you more?

Uh,

so far,

I am not going any

uh disability.

I'm going only one which is,

is a sports events for the disability people

for shooting.

I tried another so many,

but

No answer from them.

I'm just going.

In month one Saturday

for shooting.

To their place in uh

it is a little bit,

you know,

near Watford.

it's just 1 day,

maybe 1 hour,

2 hours.

They train me

to shoot

because I'm partially blind.

So,

you know,

the target which I see,

you see

properly target,

you can just do it and you shoot it and target goes

and you win.

But for me,

even I don't see.

I have to close my eyes.

I have to zoom it.

I have to do so many things.

Sometimes I see 22 things.

The target is in the black in colour,

but I see 4 or 2 of them.

So when I shoot,

it goes beyond outside the target.

So they are trying to teach me.

But I cannot say about what happened to me.

They are not listening my words.

What happened to me?

They are only there

to teach me.

With my one hand

to shoot only,

nothing else.

And

why do you want to be in spaces that are gonna listen to your words around

I want,

they should listen to me.

what happened to me?

It doesn't happen to anybody else.

We are not only 23 people in the world.

We are,

UK is a very big population.

It can happen to anybody.

There are so many,

so many of.

So many people had already had a stroke.

Different,

different type of stroke.

But what happened to me,

it should not be

happen to anybody else.

And even we don't know.

Maybe

some same person,

some people are like me,

paralysed,

abused by ambulance staff,

abused by the doctor.

They didn't manage to

To cope up with them.

And they left them.

With COVID,

but they are happy because they are living with their children or wife

or family people.

For me

I'm alone.

my word will go to the people.

Who are suffering.

people should understand

if something happened to their

loved one or something happened.

They should raise why these things happen.

if I had a family.

If I had a wife or children.

When that person was dragging me from the upstairs,

loved one should tell them,

stop.

Go and

ask for

stretcher.

Even that guy told that we cannot bring the stretcher up here,

but my loved one,

we could

fight with him and he

has to bring

tie me on the stretcher,

and they could,

they have to

bring another two men and they could drop me down.

And they could take me straight to the National Hospital

because that is the hospital for the brain.

But

they saw nothing happened to me.

I don't have anybody.

My sister,

yourself,

how many days after days you came

to know about me?

After several days.

People were not knowing me what happened to me.

Only

happened to me because I have to whenever I leave Sainsbury in the night 10 o'clock,

I have to talk with my friend who is in Manchester.

While bus is going to my place,

we talk in the.

So I was not chatting with her and she,

she saw Facebook.

I have not post anything.

What happened to

me.

So she contacted,

she knew that where I was living.

So she contacted those people because they were in the Facebook too.

And they told her

that

they have been taken to hospital.

And she

didn't have my sister number.

So she

contacted her friend.

And

she asked,

Do you have my

sister's telephone number?

She said,

OK,

I have,

I have to find out.

She even finding,

then she gave to my friend,

my friend,

then she called my sister.

Then my sister got upset.

She was

totally,

I don't know.

What happened to her because even she was telling me when somebody called me,

I was becoming angry.

I was not able to handle with the doctor

with my mom one side my mom was in India.

I'm in the hospital.

Doctors are refusing me to not to.

Come in the hospital

because of the COVID and the same time

Boris Johnson was dancing.

Mac Homcock was kissing,

but my sister was being refused not to come to hospital.

Nobody was allowed to come and see me.

How much angry you will be.

And I was totally in the deathbed.

Abused by so many doctors in the national hospital,

the staff

refused to give me medications,

refused to give me drinking chocolate,

refused to get me shoer,

refused to

give me shave because my hair and

everything was getting longer and longer and longer

and it was itching me.

I could not sleep in the night.

When they took me to the National Hospital,

maybe 34 nights,

I could not sleep.

Even

I could not have any exercise.

So my digestive system was totally

finished.

I had a blood problem,

so I could not

hold my urine.

So it was coming out himself.

So the staff

were shouting to me.

They were the nurses was the carer,

sorry,

nurses,

they were abusing me.

You are doing these things.

You are making dirty everywhere,

your body,

we need to clean you.

We need to change your night dress and everything.

We have to put the pad and everything.

They could not give even the proper pad to me.

The bed get wet all the time because

the urine was coming like I was trying to control.

But I cannot run to the toilet because I cannot walk.

But at the same time,

I could not hold it.

It comes out.

But

the staff,

the carer,

they have to

squarrel me.

I used to cry all the time.

Like 8 months I was in the hospital.

My job was crying only.

People say I'm laughing,

I'm happy,

but

the way I have spent my days.

In that hospital,

it's only I know.

And then

immediately

psychiatrists are coming.

I don't need a psychiatrist.

Yes,

I said

I was tired of this life.

It's better to die.

But I don't need psychiatrists.

What I'm doing,

I know.

Yes,

it's true.

Brain was damaged,

but

I didn't even a single thing forget it.

when my sister was talking to me,

I told her,

doctor I was saying my brain got damaged.

Then she said yes.

So can you remind me?

she asked me my death sister birthday.

I told her,

her birthday,

I told her.

To ask my dad dad when he passed away the month,

I told her my best friend who passed away,

can you name his name?

Yes,

where are you from?

Which part of Africa he has to live?

I remember each and everybody.

My childhood story.

I remember

everything.

I know

my brain was damaged a little bit,

but I didn't forget anything.

I know.

Then there was no point of me

to have psychiatry.

I'm not mentally sick

at all.

I am mentally because

things are not going

the way a patient is supposed to go.

Yeah.

10,

I'm just gonna pause for one second,

yeah?

OK,

fine.

Sorry about that,

I just needed to get a glass of water.

Um,

Jitten,

uh,

wondering if you could

share with me why you've wanted to share your story today.

I can say.

Because

The way they did,

they become negligent to me.

The way they abused me.

Because I'm not white.

treated me like a racist.

If it was somebody.

I think that it was something white person or woman

they could treat him very nicely.

But because I am Indian.

Brown skin

They didn't care.

They

don't want to see the skin colour and treat people.

I think this is totally.

Totally

Racist because I know when the doctor

in the hospital,

she was

when they come because we are 4 people in the one room,

but when the doctor come to check you,

they put the curtain,

but from the curtain when they talk.

The next person or 3 other people,

they can listen to you.

And the doctor was talking very loudly.

Then

2 people stop talking to me

because they heard what disease I have.

So why,

why you are shouting about my disease

so that people

before they were talking,

but today they are,

the doctor

shouted to me

about that what will going to happen,

you,

they they changed the medication,

all your medication has been thrown away,

uh,

the one you brought it up.

From

your house you are taking regularly,

but now we are going to change it,

blah,

blah.

Somebody from Motina Mart will come and check you and give you the medication,

blah and shouting.

So the other two persons.

They heard that I,

which disease I have.

So that,

that is totally

abused and racist.

Such things,

even any part of the world,

they say don't.

If you don't want to disclose to your people,

you are not

forced,

isn't it?

So I have,

I have

hide it from the whole world at the moment.

Only doctors they know and they don't tell anybody,

but she,

the doctor,

she was shouting and even I

mentally shouted that I don't want this doctor,

I want to change her.

Then she called me in the private room and said,

Oh,

sorry.

Sorry doesn't make

dead man alive.

And when you say sorry,

means

you are going to repeat that

thing again.

I hate sorry.

I don't have sorry in my

dictionary

after I got struck.

So don't tell me sorry.

With me.

I will not

answer you anything.

So they should stop this racist,

which they are doing to me.

Because I am

not white.

Because I'm gay.

Why,

why I'm telling asking them.

Because when

you came to know about

my disease.

Definitely people will think of two things.

womanised

or gay.

Those two people,

one was.

I can't remember,

but

The one was Asian even,

but they stopped.

While I was going back to care home.

They didn't bother.

One person just left without saying bye to me.

No,

I mean,

nothing.

Even the doctor themselves,

they were not there when they were taking me to the

Uh,

get home.

I got one

This was very,

it's very,

very

important for me in my life.

My Pakistani friend,

when,

when I was working in Edgeway Road.

He brought me,

uh,

you know that,

uh,

when you want to check your glucose.

Yeah,

that machine,

he brought it from me,

Pakistan as a gift.

I give,

they took it from me.

They said you might kill yourself with this machine

that has very small pin

to put in your finger and you check the blood,

and they took it

National Hospital

in the safe place.

When I was going,

I said,

Please give me my machine.

I want it is my friend

gift.

They could not give me till today.

They said we,

when we find it out,

we will give it to you.

They didn't give me till today.

I miss my friend is already going to Pakistan.

That machine was my thing,

which memory of my friend.

We worked with together in a hotel for several years.

Mm.

So why,

why they take the things and they,

maybe they throw away or maybe they took the home.

This is not acceptable at all.

If they throw my medication

of my disease.

That is fine.

Because I was,

I didn't pay for money.

They throw it in our industbin.

That is fine,

but my machine was my gift.

Yeah,

I know,

I know.

She,

I'm just gonna pause one second.

Yeah,

so,

um,

in terms of,

we're coming to the end of the time we've got together.

What messages would you have for people doing co-production?

I can tell the coproduction.

To involve me.

To tell my view.

What happened to me?

Involve me so I can share.

I can

Involve

With

another disabled people.

Don't

Take me,

uh,

don't bring it racist to me,

homophobic or anything.

us.

I can say all the disabled people who are involved.

We can't work,

but

we can do more,

more,

more.

We have

something to do for our country,

our people.

Our friends,

our loved ones.

We are not here just to stay at home.

Please,

please,

I request to involve us.

Let us

say something,

share our things with what happened to us.

Do not let us go

because

I am a brown skinned person.

So you will not involve me.

Don't

let us cry only.

Let us laugh.

Even we want to laugh

like you people are laughing.

That's all what I want to say.

Today

Thank you.

OK.

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Posted By

Author

streetreporter

Post date

08/01/2025