Report transcript in: Partners In Care and Health - Information and Advice

Please Report the Errrors?

but

yeah,

cat

allowances. Uh,

much.

Yeah, I I'm his mom, and at the same time, I'm his carer, and I get care

allowance.

Thank you. Thank you.

So,

in this

conversation,

we are particularly interested in,

um,

sort of

hearing about

your experiences of

accessing information and advice and guidance

and what the sort of successes and the challenges

of that are,

and our conversation that we will have

will be

around those themes.

Mm.

And I should, um

uh na na

Principi.

Uh uh.

No.

uh,

Uh,

na I. I

No, I OK.

Hm?

Yes.

Abu.

Sorry. She's saying that we have the same wallpaper.

No, Sorry. She said to me Sorry for this.

Love it. No,

you can talk about that. When? When we're finished.

I'm

No. I just wanted to say

I love it.

Um,

OK, So my first question

Natalia,

tell me what your

what do you understand about the term

adult social care?

Uh,

yeah.

Uh, but

but

Perin

Uh,

no.

Uh,

do you mean care? Care, allowance

care,

care

allowance. However, however you understand it, so that could come into it.

Uh uh uh

uh,

Yeah.

so as as, um what I I how I see that, uh, social social services, social care.

I see that the the problem. There are two types.

First up, this is when they, um, monitor someone.

If there are problems there, let's say in the family

and the second type, this is when they help, uh, someone who who has, uh, some, uh,

difficult difficulties, for example.

Like, for me, it is hard to fill in the papers.

Uh, because obviously, um

uh, of my bad English.

And then I can, uh, turn to, uh, social, uh, social work to help me.

Hey,

OK, And

when

you need help

with

filling in the papers,

do you get that help?

And what is your experience of?

You

need

the

and

polluted the form.

Uh,

no.

Uh, pagarusa

blisko,

Uh,

Migas

paga.

Uh, D

attack.

So do you know the problem with this, uh, with social workers?

Uh, is that they It changed quite a lot.

And if, for example, I have a one social, uh

uh, social worker, uh,

this year

and then, uh, and I don't ask for help. I don't need any help. And the next year,

and it happened. And there is another social worker,

and you kind of have to start from the very beginning telling them things and,

um, telling them, telling them things. That's why I try not to ask for help.

Uh, I ask, uh, uh, like, uh, particular with the papers.

I asked my family, my friends to help, and then I have a a son.

He's, uh uh Well, my middle child, like, I have a son and, um Mm.

And friends.

What

don't know what happens? It's just what happens. Every year a new worker comes.

They talk to me, introduce themselves III.

I introduce myself, tell them my story, and that's it.

And this is the end of our,

uh,

communicate like I mean,

and how does that feel?

Uh,

you see, uh, it would be easier for me much, much easier for me if it would be, uh,

the same, uh, the same, uh, person who like worker,

uh And then I know them. They know me. And then, um uh and, uh and I don't have like, uh,

like now I have every year I have to go through

again through all these things I I have to tell about,

um where I'm from.

What My problems are, uh, about my family, about my son.

What problems are so the same? I'm all the time telling the same story. I'm telling.

So for me, it would be easy if there would be someone who is, uh uh who has been working

with me, uh, through, I don't know, for many years.

And then they know me, I know them.

And it would be easier for me to turn to them to ask them

to help me when I need help.

IPs

como

And, uh uh, you know that, uh, psychologically, it is easy to ask for help.

Uh, from someone who you know

already then from someone who you don't know

who is

the good

and what is how how it works now.

So it looks like, uh what they what they do social workers, They,

uh every year they just fill in the same form,

and that's it.

Mhm.

And tell me a bit more about what it's

like when you are

talking to when you are asking for help from somebody that you know

KKKK uh, K.

Yeah.

Uh,

Cato

Boar

Ani

Uh, EAV,

I'm not sure whether I, uh, understood. Uh uh, uh, your question correctly,

But, uh, if I need help, I ask my friends to help me.

Uh, they,

uh uh they help me to translate the letters.

Uh, or, um uh, if I need to fill in some papers. So if I need help to

with this I, I ask my my my friends,

OK?

And

just little bit more on that, if there is any in terms of what is it? What? What is that?

What is that experience, like, Is is that,

um how does it when asking for that help and doing that with

friend or someone you know?

How does that make you feel?

Ah,

uh, you see, um, I just, um I would say that it it is, uh, it

is not easy to ask someone for help.

It is easier when you are helping. So they know to offer your help to someone.

Uh, and how it happens if I need some help. I just, uh call my friends. Uh uh.

Ask them, uh, uh, for help and explain what I need.

And if they can do it, they agree

If not, they say no. That's it.

And how

thank you for that. Thank Thank you for that. Um, answer.

Um and And how easy is it to find the information?

You You need

a KV

Invalid

PIM.

Yeah.

No,

no.

Uh,

how worked the man?

Uh, mia,

No cat

problem

is R

camp

cao a

when

you so

credit

because

it's

So I would say that it's it's not It's not easy to find any information.

I would even say that it's very hard to find information.

Uh, for example, um, we've been here since the 2012, and, um mm. So Mm.

And, um, my husband

Sorry. My son, He used to have Sorry.

Um, uh, my son used to get, um So now his disability allowance is, uh uh

is £500.

Uh, but in the past, he had less.

And do you know it's not enough? It's not enough, uh, to buy proper food,

uh, to to do not to do things with his money.

And I kept asking social, uh, social workers I made about

for advice. Or maybe for some information, whether I can get something else.

So they said that it was, uh, the only what I could get.

And I couldn't get anything else or more. Uh uh, money.

So, um, and then I was working, um, working what I was doing,

I was coming to people's houses and I was clean.

No, cleaning them, like as a cleaner.

And there was one woman, uh,

who I was working for. She had she was in the same situation.

And when we start talking, she told me, uh oh, no, you can get, uh, like,

universal credit.

You can go for it. So she told me.

So she gave me that information, which I could have been given a long time ago.

But social workers just didn't Didn't, uh, provide me with this information.

Thank you.

And how did that make you feel?

What?

What is that one?

Um,

so,

uh,

you see, I'm that, uh, that, um type of a person which, um

I feel like I. I cannot stop,

no matter what.

I need to move. I need to do something I need to do, you know,

and And do you know when I found that information

when provided by the woman

I felt like, Oh,

I've I've got somewhere. It was like victory for me. Now I know what to do now.

I found something else.

Thank you.

and

in an I Do

we?

What would you

want?

What would you expect to find

and and and and where

When you are seeking information, advice and guidance

Yes, it

does.

Yes. It was,

uh, uh, on

pre

uh I

was

you see what, uh, what I think about all this?

This is if if if, if, for example, if we have if someone has

a, um, like,

social care helps them Or we have, like, social worker,

uh, who is, uh, working with us in

us.

This is, I think, because they know, um,

about, uh, they know more. They know they have more information.

They should,

uh, volunteer tell us that information. It's not me asking them all

the time because I don't know what they can offer.

I don't know how I would say like that list of what? What help they can offer.

They should be telling us we can do this and that and that you can get

that and that and that so they should give us full information for us to be aware

what we are entitled to where we can get help. What help we can get.

Not for us and and how it happens. We should all the time ask.

I don't know what they are.

You know what is how you say the authorities? I don't know what they can help with.

I don't know what to ask them about.

Thank you. Um,

you've articulated that you've said that really well. And what you're saying

is you don't know

what you need to know.

So how do you know what you need to ask for?

stuff the

wing is nice. Yeah.

Stoga

nus as knights I by

the movie

is night

crash

it?

Uh,

yeah,

because

the gus

to turn

over.

You see, the thing with me is that, uh, I'm from a

different country,

so I don't know. Uh, here,

uh, what you can get, uh, where you can get help and anything.

So and, um,

I don't know,

IIII I didn't know.

Uh, what help they can give me.

So you see? And it just every year I find

out something I know something new.

Where else,

if any

Do you get your help

from?

Uh,

uh, yes.

With

the

P at

at P.

Uh, P

ku.

Uh, what kind of help you are talking about? About emotional health or financial? Or

what are you talking about?

Um, in relation to

the care of your son.

So I of course, it's really a a general follow up question.

So a lot of it seems to be the help comes from her family.

It's

My question is, there is a secondary question. Is there any other places

that Natalia gets help from

when she's seeking information?

It's not

ka.

It's,

uh uh

What

is VV,

in, uh uh,

Nika Nik.

But,

GP Doctor

No,

uh, specifically was

Avani,

which is

beauty.

Epilepsy?

Uh, no,

just the choice

factor, Doctor Morta

paska

is very

practical.

yeah

boto.

So I would say that, um, this is just a social a social care.

And then, um GP

Uh uh, When, uh, so my my son has, uh, apart from, uh, being, uh, autistic.

He has diabetes and epilepsy,

so I talk to our GP and just I can get advice from GP. And sometimes

GP advises me what to do how to do gives me some, uh, information and then family

Hm.

And decide which direction to go.

Um,

have there been

any

positive experiences of

seeking information, advice and guidance,

Um,

that that she's needed Or, you know, in terms of like, from

local authority or services and organisations.

Mhm.

Yes.

Was

was,

uh,

in,

uh,

WAKK

Mini

Uh, V,

Uh,

mini

VA.

No, I no

go cause I just,

because even though

no,

I cannot think now about, uh, something like some something in particular.

Do you know from my experience,

I just want to say that there was nothing that that there has been nothing negative.

Uh, with my communication with social services,

I can say that everything was positive.

Uh, they were positive when they were coming and positive when they were leaving.

OK, so to clarify, I

understand, in terms of her experiences have been

OK. There's not been anything unpleasant,

but the ability to find information get help

has

been has has been difficult.

So I understand the difference between

complaining and going this bad thing happened

and

that

it's been really, really hard

to get information that's needed,

which,

in a sense, is a negative. But it's not. Someone has mistreated her.

Uh uh

uh uh

uh,

no, I

don't

have

figure that

out.

Uh uh. I cannot say that I. I was mistreated in the past. And what I can say

that it's a shame that it's all the time. Like new workers,

but each one of them, they always were positive.

They always were nice. And when they are leaving, I had nice feelings about that.

And, um and and And I can think I don't think they are.

Their pay is so their wages are

like they get lots of money.

So I just can get that those people who work there, they just work because they

want to do it.

You know,

understand.

understand that that will be

That will be reflected. Yeah, it's not a complaint. It's I might Yeah, it It's

I'm just kind of clarifying the that the

we've understood one another, but I, I I'm

I'm comfortable that that that has been understood.

Um,

don't

worry.

No, I'm not complaining. No,

I never had

negative

negative experience with social workers.

It's

always been positive.

Um,

so this interview is about

hearing your story

and your lived experience of

accessing

social care.

So the questions

follow what you say

and are about those experiences.

And so it's about that. And I understand

the difference between you telling me your experiences

and,

um,

a complaint.

I there's

there's a there's a subtle difference. And because of the language,

the challenge

don't worry about

what I feel is

coming up.

vor V

Sita

mhm.

sort of last few questions really is,

um,

in your opinion,

what steps or what things could the local authority

to,

um,

make things easier for you?

Mhm

the information that you need

CAA,

Popo,

Informa,

Vanna.

No, I didn't,

um,

yes,

but,

uh,

it's it's it's, you know, it's it's quite kind of not an easy question. Not easy.

But,

uh, I can say that what would be probably, uh,

what would be better for me if there were, uh, how to say, um,

social worker. If they wouldn't change this often,

it would be a social worker for longer time.

And if they could explain me if they could come to me and say, we can do this,

this and that.

You can get this and this help.

And then obviously I would I would think I would decide whether I need it.

It's made that I don't need it.

And then obviously, like I said already,

it would be better if there would be one social if they wouldn't change.

Uh uh uh,

because how it happens every year, a new social worker, they come,

they fill in the same forms.

I tell them the same story, and then they go.

And I don't think that, uh, they have a year for them is enough, uh, to

how to say, uh, to know my, uh my my, um, circumstances, but, uh, to help me. But, uh,

So this is what

How I see this. Thank you. That's a really good answer.

get spicy, but the

thank you

is there.

So we're coming to the end

of, um, the interview. Is there anything

that you would like to say or add?

Um, or answer a question that I have not asked.

No,

no,

no.

So, no, I don't have I don't have questions,

and I be because it's my first experience.

I've never had this before doing this type of meetings. Yeah.

And, um

uh, and I don't have anything, uh, to add I think I've said anything. What I wanted

just

OK,

so,

um,

that brings us to the end of the interview. I'm going to, um,

stop the recording now.

Um,

and we are complete on that, so I'll just stop the recording.

I'm not gonna cut this off straight away, though.

just

find the right button.

Can

you

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Author

cat@curatorsof…

Post date

10/06/2024