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Report transcript in: Experience of Information and Advice in relation to social care from a Warwickshire Resident
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Experience of Information and Advice in relation to social care from a Warwickshire Resident
Please Report the Errrors?
I think
I for advice and guidance. I've had carers UK available for me at
the end of the phone. However, in terms of
so that's the plus point.
The negative is that
I've read in information carer breaks,
but I've never found one available in two decades.
Never.
And when I've inquired,
the answer I'm given is they are not available
due to a lack of funding. And,
um, funding clawed back.
And for me,
um, I gave up
because
the amount of time that I spent inquiring,
I realised, could have actually been spent on my
other essential duties and responsibilities.
I would steal two or three minutes from here or there
just to make a phone call and wait
to to hear that, to be told that,
um
that there isn't such a thing.
Right now it's something that you need to go away and inquire for yourself.
Well, I did.
Then I went to the major organisations and businesses such as centre Parks,
and my mom is not into butlins. It's too much of a noisy environment for her.
She needs one of reflection for me. I'm open to all kinds of environments.
Um and so
um
when I wrote these multimillion
pound businesses were sending an email
and not supporting this initiative.
They're not supporting funded
or
even complementary days
where they may have a career day,
and they're not even entertaining. They,
uh, research of the least popular day for a booking that they could give it away.
They're not even supporting that. And I was
I was really alarmed.
And I thought, Where is the social responsibility in this?
Um, and I'm finding as each year passes that
our society is reducing in care in, in,
in customer care quality.
Mm.
Well, I relied upon, um,
uh, carers UK,
and
they pointed me in the direction of adult social care
and asking the local council about their pot of funding.
And that's where I had this rejection that it's it's not funded anymore.
Um,
and I think
the impression I had
is
actually they said it quite clearly.
Well, if you would like a social worker type of assessment to identify needs,
um, we could arrange that that there is waiting time of this period,
and then the assessment can take up to six or eight weeks,
and then you would You should expect to hear from them,
uh, 12 to 18 weeks later
and that's not what what I expected.
I. I am full of complications in one day of seven.
I didn't need to wait around for that.
I'm already waiting around for adaptation improvements
and another OT assessment every time.
My mother's needs change.
OK,
if we then move on to paediatric
my child, who had
was born with global developmental delay
due to her prematurity.
Uh,
she went through OOT adaptations,
and suddenly they were cut off. And when I
questioned why, they said, Well,
she's out of the early years Age group now and I said yes.
But
that doesn't mean that she she no longer has
imbalance or she no longer needs support in stepping
and walking.
And then she cannot scoot like the Children her age and the paediatrician.
Asked about this,
um, she's learning to scoot while others are running.
How can you say she's just come out of early years? Our
service owner goes up to early years. What provision is there in place?
Well, there wasn't so
there. I was again
for hours and hours calling external
businesses profit making limited companies businesses
and asking them, Do you? Do you? Do you, um,
have a reduction rate, remember? Because I'm not a working,
uh, professional earning a salary. So then I was contacting businesses.
Do you Do you have quite a day where
I can bring my daughter in for a trampolining experience
and they would say, Well, this is our quietest day,
and then I would go on to the next question.
OK? Do you have, um,
a
concessionary charges
and I may need to support her. Just stand.
Hold on to her arms when she's on the trampoline. No, you you will.
Well, if your feet are going to be on that trampoline, you'll be paying a ticket.
And I said, All right, OK,
where's the consideration and respecting that?
My daughter would try to just jump
fall and then sit there crying because she needs to
be lifted again so she won't enjoy that experience.
So I every single
reaching out was a journey for me, and it did not need to be so complicated.
So then the question is
going
back to one of the early questions you asked me is, um,
how about myself as a carer in my experience. Well,
I was extremely healthy all through my youth. I didn't even know
what goes on a prescription. Because I never had one
from the GP until
I didn't even realise I was having anxiety attacks.
I didn I didn't even know what they were.
And it was because
these organisations were knocking me back when
I was knocking their doors for support.
Mm.
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