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Report transcript in: ADASS East - Kadie talks about her experience as a Carer
Please Report the Errrors?
I've been
I
I was told when Mark was 10 that what I
was doing for Mark was over and beyond a normal parent
when that by a social worker in a hospital setting,
which was the first time I really thought about actually how how much more I was doing
than my peer group A parent.
Um,
around the same time, my son was deemed to not be able to be educated locally,
So he was sent off to, um,
and out county placement because it was before inclusive education.
And so,
um,
that was quite challenging, because that's not what we wanted to.
We had Children expecting to have them in their lives full time
for a longer time than so. He was a He was in residential school
during term time. He came home at weekends,
and then he started the personalization agenda because
it just happened to coincide when he was 18
and there was Trans.
We fought locally. We were working with partnership with the County Council,
and we started to get, um, team. Um,
key workers and transitions all happened when he was 18,
so he's been on the forefront of all of the changes
and he was really lucky to get a good budget
and and get his dreams of moving. He came home at 18, moved into his flat when he was 23.
In that time,
we'd done a circle of support. We'd done transition. Um, he he highlighted his
goals of living independently,
having a car which we got through motability and things like that
and he's cared for by a team
and my my route my life alongside that was when I was 50.
He moved into his flat.
I knew that then I had 10 years where I needed to get him settled and then
move it over to someone else to do. But at that time, when we set up his team,
all the
organisations out there that
were more institutions and they hadn't really taken on
any kind of personalization agenda because it was
like early doors and it was really early.
But now I know because I've started to investigate
that most organisations are now run by people who were
at the forefront of circles of sport and all that
kind of stuff and they're much more person centred.
As Joe's found out with her
her provision.
So I'm
and and covid really
highlighted it to me that I really needed to get on with my contingency planning
because it went from Oh, I need to do this in the next few years.
By the time I'm I'm now 62. I wanted it by the time I was 60. To be like your mum, Abby.
Just Mum.
Not carer. But I'm on call every other week. I'm doing shifts.
We We're two people down. I'm you know, I'm part of the at the moment,
Um,
and it's very confusing for my son because he thinks he's going to come
home and not come home and all this kind of stuff and covid,
you know,
I had to lock down with him during covid because two of his support workers got covid.
So I was self isolating with him.
So he's had a really unsettled year,
and in that year,
we were encouraged as carers.
I don't know if you came across this to write some
kind of contingency because one day you might be well,
the next day you might be on a ventilator,
so I started that process. Um,
and I've completed it and
my journey now is to transfer his
and two
over his team to an organisation
so that I can sit back.
But I've now got to broach this with social care because he's had the same budget
now for 14 or 15 years.
No uplift for
pensions, no uplift for cost of living.
Um,
and I've now got to find 15% more to have an organisation. Take it over.
And although I've always said to them,
you have me for free and that costs you about 15% because I'm my head,
I'm a finance and HR person In my professional life,
I've made them aware no one's really acknowledged that. And now I've got to try and
and also we've not had annual reviews. They've been pushed out.
We had a review just before Covid hit
the Social Workers now left after a long period of sickness.
So anything that was said or done at that is now lost,
and we're going to have to start a fresh,
and at the same time I'm gonna say I've had enough,
so that's where I am and I'm I'm really worried because
taking this move, although I know the rules are the rules. The law is on my side.
If he's had this care provision, they can't take it away from him.
They might try to rehouse him or whatever might make life easier for them.
And I I feel like there's gonna be a battle before there's clarity.
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